DO-IT News October 2021: All Articles

The DO‑IT Trailblazer award highlights DO‑IT community members who forge new pathways that will benefit others. Through their work and accomplishments, they have changed the way the world views people with disabilities and have increased the potential of people with disabilities to succeed in college, careers, and community life. Congratulations to this year’s four honorees!

Read about previous DO-IT Trailblazers online.

Emily Boeschoten, 2015 Scholar and Ambassador, participated in the National Science Foundation’s Young Scholars Program over summer 2016 at the UW Center for Neurotechnology (CNT), where she began working with Center co-director Chet Moritz. Over summers 2018 and 2019, she did undergraduate research with Chet at the Restorative Technologies Laboratory. Chet shared that over these past five years, Emily has enthusiastically shared her rich personal experiences with our doctor of physical therapy students for the past 5 years.  Her important messaging, delivered with a robust sense of humor about her challenging diagnosis, has inspired future health care providers to put the patient at the center of all clinical decision-making. She has also engaged deeply in research projects, empathizing with participants and broadening her colleagues understanding of how disability can inspire leadership in powerful ways.

To expand her horizons, Emily joined the University of Oregon Business School’s management consulting group in January 2019. In June 2020, she graduated from the University of Oregon with a bachelor of science in sociology with departmental honors, Phi Beta Kappa. She was offered the NSF Graduate Research Fellowship in Sociology for 2021, but declined due to pandemic-related reasons. She participates in the Disability:IN NextGen program and has recently returned to working in the UW Center for Neurotechnology lab.

Maya Cakmak, a DO-IT collaborator on our work in AccessEngineering, has worked to introduce students with disabilities to robotics. Maya is an associate professor in the Paul G. Allen School of Computer Science and Engineering at the UW where she directs the Human-Centered Robotics Lab. Her research interests are in human-robot interaction, end-user programming, and assistive robotics. She aims to develop robots that can be programmed and controlled by a diverse group of users with unique needs and preferences to do useful tasks. Over multiple summers, Maya has hosted week-long workshops related to robotics for DO-IT’s Summer Study program.  She has also hosted AccessComputing students learning about research in computer science.

Meenakshi Das is a recent graduate of Auburn University who studied computer science. She has been an active member of our AccessComputing program for the last five years, coordinating panels featuring students with disabilities at conferences, participating in conversations on our mailing list, and attending a capacity building institute. In 2017, Meenakshi, along with AccessComputing partner, Dr. Sarah Lee, were awarded a minigrant to facilitate a one-day workshop for students who are visually impaired. Meenakshi has engaged in many activities that benefit the disability community, such as running a Facebook support group for working professionals with disabilities, Working With Disabilities. This group provides a space to discuss ableism, accessibility, and share useful resources with each other.

Grady Thompson, 2015 DO-IT Scholar and Ambassador and former accessibility student assistant for Accessible Technology Services and DO-IT, recently graduated from the University of Washington (UW) with a degree in informatics and a minor in disabilities studies. After graduation, Grady joined DocuSign where he works on digital accessibility in the engineering department. While Grady was at the UW, he interned at Intel in their accessibility office, where he contributed updates to their internal website and helped develop new processes to make Intel’s workplace and products more accessible. As a universal design consultant for the Associated Students of the University of Washington (ASUW) Student Disability Commission, he worked on projects to improve the accessibility of UW’s student government, programs, and activities, including serving on a task force that ultimately led to the creation of a new office of inclusive design within ASUW. Grady has been a student staff member supporting Summer Study for the past two years. Grady also participated in the Disability:IN NextGen Leaders Program where he met his mentor at Intel who mentored him through his internship at Intel.

Autism, or autism spectrum disorder (ASD), refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech, and nonverbal communication. According to the Centers for Disease Control, Autism affects 1 in 54 children in the United States today. There is no one type of autism—it’s not called a spectrum for nothing! Some people with ASD may require significant support in their daily lives, while others may need less support, and in some cases, live entirely independently. In spite of stereotypes, some people with autism may be very social, but have difficulty understanding other people’s viewpoints or interpreting their behavior. Many people with autism also have difficulty dealing with certain sensations (loud noise, bad smell, strong taste, rough textures). People with autism also often have “special interests” that they focus on and want to share with other people. 

I believe most autistic people like anime because it often exaggerates the characters, making their intentions very clear and not leaving anything out. When you have a hard time interpreting what people are doing and why, anime doesn’t leave you guessing! Anime also has a wide range of interesting characters, many of whom share traits that many autistic people recognize in themselves. It is exciting when you see your disability (or features of it) represented in a positive and interesting way.

Some examples of anime characters with autism include Sai from Naruto Shippuden, Nagisa Furukawa from Clannad, Shiina Mashiro from Sakurasou No Pet Na Kanjo, L from Death Note, Mei Hatsume from My Hero Academia, and Felli Loss from Chrome Shelled Regios. Many of these characters exist in their own world, are obsessed with their specific interests, or need tips and tricks to communicate and make friends with neurotypical people. 

Sai was the first autistic anime character I ever really connected with, because he is so open about what he does or does not understand in social situations. I related so much to him! Anime provides this avenue for people with autism to more easily connect with a variety of characters, and for differences to be seen as normal. All people with autism deserve acceptance because they are all beautiful, whether they are fictional or real.

My name is Deliah, and I attended the DO‑IT Summer Study Program. I loved studying and learning new ideas from this program; however, I also had to work this summer.

I work at Subway; it’s near the highway, so it’s usually busy. This can leave me constantly drained of energy. When Tami notified me I was in the program and that it was going to be online, I quickly decided I would figure out a way to work and still participate and be active in DO-IT classes. 

I told my manager my schedule for the Summer Study and then emailed Tami with which days and times I needed to work. At first I thought it would be difficult to sort out my hours, but it made me very gleeful that they accepted my given times, which let me plan ahead! I also made sure to remind the DO-IT staff before I left for work.

Going to work and participating in Summer Study ended up being easier to balance than I imagined thanks to the accommodations given to me from both my boss and DO-IT! 

During DO-IT Summer Study classes, I have learned many skills including web design, communication, and college life preparation. For example, what I learned about college life preparation is that you have to learn skills on your own in order to find a successful life in college, and that you must advocate for yourself. 

The most exciting thing I experienced in the DO-IT program was meeting people who have similar interests. The most challenging part of the DO-IT program to me was developing codes for website design. Specifically, I added details to the About HTML page, Evening HTML page, Newsletter HTML page, Photo Gallery HTML page, Meet Our Scholars HTML page, Contact Us HTML page, and created a section heading. I also developed my own personal web page using Visual Studio Code. I am passionate about coding that will benefit people’s access and make life easier for them. Regardless of the background and physical conditions of the individual, coding can make everyone’s dream come true.

I am so thankful for the opportunities and experience I have received from the DO-IT Scholars program. They will enable me to succeed in college academically and socially.

Low Vision

When I was around 11 years old, we discovered that I had significant vision loss. I started using accessibility products for people with low vision, but originally refused to use a mobility cane because I didn’t think I needed one—I was used to how I saw and traversed the world. I didn’t use one until I was 15 and I received an assessment that recommended that I use one. At first I was unsure, but I decided to be optimistic and at least try out the idea of using a cane. So, I gave it a try. The first place I went to try out the cane was the mall because I thought that would be busy and an excellent chance to see how people reacted to the cane and how I felt about it in the large crowds. I couldn’t believe the benefits I experienced from using it. I was less stressed, and was even able to enjoy myself. So, now I use a cane whenever I am out in public.

Cerebral Palsy

I have cerebral palsy as a result of a stroke in the womb. I would say that this disability has impacted my life the most, but it is also the one that I forget about more often because I’m so used to adapting to anything in my life. Some things I have adapted to doing “differently” than most people are putting on a shirt, tying my shoes, and washing my hands. I also wear orthotics that help my mobility so I can move without pain. DO-IT Summer Study has helped me a lot with my disabilities from the technology and the support they have given me so far.

Epilepsy

I also have partial company seizures, which means I have non-convulsive seizures. So if you see me having a seizure, I would just look like I am staring off into space. I have small seizures almost every day but about once a month I have a more intense seizure where my vision goes out and I am unaware of anything for about 2 to 3 minutes. Someone usually leads me to the couch or my bed and I lie down for about an hour. After that I am usually fully recovered and ready to go on with the day.

In conclusion, the disabilities I have are quite significant, but I have learned to adapt to them since they are the only life I know!

Have you ever wanted to get a box of snacks sent to you for free? It’s fun, exciting, and you get to eat! Snack boxes are an exciting part of Summer Study because you get to pick what you want, get a package in the mail, and then eat all the snacks!

The first reason why snack boxes are fun is being able to pick out what you want. Once you get onto the website, there are different snack topics like beverages, pantry items, crunchy snacks, and more. When clicking on the item you want, there should be an add to cart button. When you’re done finding all the snacks you want, there is a checkout button—we got to pay with credit from the Scholars program. It was exciting to get the confirmation email from UPS and get a tracking number. You then can look forward to your snack box!

The second reason why snack boxes are exciting is getting the package in the mail. After you pick out your snacks, the UPS company will label your package and send it off. After a few days, it arrives in the mail—then you are free to open your box of snacks. 

The last reason why snack boxes are great is the eating. After opening the box of snacks you can eat to your heart’s content. How’s your box of snacks? You’re probably thinking it was fun, exciting, and—the best part—delicious.

Did you know that anxiety disorders negatively affect thirty percent of adults in the United States, while they only affect eight percent of children and teenagers in the same country? I am a teenager with general anxiety disorder. Consequently, I generally have a difficult time getting used to new environments. However, my teachers and family members highly recommended that I participate in the DO-IT Scholars program so that I could find it easier to prepare for college. I have always wanted to go to college, but I have also always been extremely nervous to transition into adulthood. I feared that I would never become ready for all of the responsibilities that I need to take on in order to become successful as an adult. Nevertheless, when I got accepted into the DO-IT program, all of the staff supported me so much that I currently know much more about college than I did even a few weeks ago! This decreased my anxiety about needing to stay overnight away from my parents for so long. The DO-IT program has made fantastic progress in defeating my excessive anxiety about going to college.

I really enjoyed watching the movie called Fixed and discussing it with my peers. Here I learned that my disability should not stop me from being successful in college and beyond. When DO-IT staff member Kayla Brown showed the whole class Fixed, I immediately caught the premise of the movie—your disability makes you who you are and doesn’t need to be fixed! This premise sank into my soul so much that it played a major role in decreasing my anxiety about college. 

Kayla and the movie both presented excellent explanations about the differences between the medical and social model of disability. Before I started the DO-IT program, I thought that only one model of disability existed. However, Kayla and Fixed both described how the medical model presented that “disability is a problem that exists within the person and the goal is to fix the person.” The medical model of disability was commonly used before the Americans with Disabilities Act of 1990 prohibited discrimination based on disability. Nevertheless, the presenter and movie both stated that the medical model of disability is largely obsolete. Accordingly, the medical model even showcases ableism, presenting people with disabilities as purely inspiration for people without disabilities. However, many Americans currently realize that the medical model of disability is incorrect. 

Now, many people use the social model of disability. According to Kayla Brown, “the social model recognizes that disability and impairment are two different things. Disability is a social construct created by barriers within institutions, attitudes, stereotypes, and inequality.” The social model does not present any phenomena about needing to fix disabilities. Instead, the social model presents disabilities as deriving from and playing a major role in society. Consequently, learning about the social model helped me become less anxious about the life ahead of me because it made me realize that Americans are really improving when it comes to respecting people with disabilities. Therefore, in a lot of workplaces across the United States, the chance that I will be hired for a job will be similar to the chances that people without disabilities will get hired for that same job. This highly increases my confidences about my successes later in life.

Since this year’s DO-IT Summer Study was fully online, I knew that I could not spend my whole three weeks of summer study performing DO-IT related tasks. Therefore, I could finish all of my DO-IT related activities on time and still embark on local ventures that were not at all associated with DO-IT. I researched events that occurred within King County that I could attend with my mom. I found a super fun event where I met a whole bunch of Seattle sports-related characters and took selfies with them. This event occurred in South Seattle. After I met all of the characters, I made some pastel art for a nearby art club and got to watch various dance performances. This was one of the best ventures that I had gone on since before the pandemic! This experience showed me that I can still behave like a kid during my days off work as an adult. Since very few kid-friendly events occurred during the pandemic, I forgot that I could still embark on these kinds of kid-friendly ventures as an adult and not be judged for attending those events. I also got to spend an afternoon riding water slides at Wild Waves!

During the last few weeks, I have learned that even though I am super busy performing work-related tasks so frequently, I can still make time to embark on super fun adventures! Moreover, I have learned that DO-IT can help me succeed in college and beyond!